|
|
|
Subject: Kidney donor sites to search
In reply to your inquiry re how to search the net for
a kidney donor, I'm offering you the sites I found most valuable.
I decided to become pro-active and find my own donor
on the net after I completed all the required tests and was placed on the
National Kidney Transplantation List. Why? Because I was told it could take 3-5
years for a cadaver kidney at and 67 I was not prepared to wait.. By using the
following sites and "Google" to find additional ones, I believe that anyone can
find a donor if they spend enough time searching the net. It's important to
know that many people are not altruistic and will request payment for the
kidney. This of course is illegal in Israel, America, and many other countries.
However, it is possible to contact an agent and go abroad for a transplant,
living donor or cadaver. The cost is generally from $50,000 to $100,000
depending on the country. It's best to "Google" kidney donors in whatever
country you want. I know that they are available in Latvia, Columbia, the
Philippines, China, Turkey, etc. I suggest that you work thought the following
sites and if you have any problems contact me via the net. Please write to me
in English if possible. I hope that this info will be helpful. If you find
additional sites on your own I would appreciate it if you would share them with
me so that I can expand the amount of information I am able to send to others.
Good luck. Judith Nusbaum
Possibly the best site to
investigate is http://www.neshama.org I found the site on the web and
contacted it's creator, Fred Taub, who helped me to write up an announcement. I
received several replies. The posting is free.
Fred
created Neshama.org to help people find organ donors. Neshama helps people get
the word out to encourage people to get tested to see if they can be a live
donor. Also, people listed on the Neshama website have had their cases
verified, so people know the need is real. Please visit Neshama.org and let me
know if you want to be listed, and we can take it from there.
Thanks,
Fred Taub
President,
www.Neshama.org
savealife@neshama.org
I sent my request to everyone on my email
list. They in in turn sent it to their email lists. I suggest you do the same:
Dear Friends & Family,
With everything else that's been going on here in
Israel, a friend of mine and one of Eretz Yisrael's strongest and most active
defenders, is seeking a kidney donor. I met Judith last year when we roomed
together over a Shabbat in Neve Dekalim. I'd gone at the first opportunity
after hearing of the proposed disengagement plan, cynically thinking, "After
all, this may be the last chance I have to be there." Ironically (or not), I
was right. Judith and I hit it off and tho we didn't see each other much - she
was very busy this past year with the political situation (she maintains a
pro-Israel newsletter and website for people all over the world) - I have come
to respect her tremendously for the selfless work she does, and all this given
her difficult medical situation. So if any of you can help in any way or send
her possible leads, please contact her directly. It would be a huge mitzvah.
Don't respond to me - if you can forward this to your
e-lists and/or know of anyone who would be willing to consider doing this,
please contact Judith directly. And thank you. Adina
Dr. Stephen Bartlett, Director of the Transplanting
Unit at the U of Maryland Medical Center is a warm and caring physical. I
suggest you contact him directly for advice:
If you
would like to make an appointment or talk to someone about our services, please
call 410-328-5408 or 1-800-492-5538.
This is Dr.
Bartlett's email:
Univ of Maryland Medical Center:
Dr. Stephen Bartlett: 410-328-8407,
sbartlett@smail.umaryland.edu
Visit this excellent site:
http://www.matchingdonors.com
Robert Volosevich
Jr.
Vice President -
VP - MatchingDonors.com
766 Turnpike Street
Canton, MA 02021
781-821-2204
Another important site:
Transplant Living
P.O. Box 2484
Richmond, Virginia 23218
info@transplantliving.org
Mesora is an excellent
site: Post your request on it. www.Mesora.org
----- Original Message -----
From: announcements@mesora.org
https://www.Mesora.org/Donate
info@mesora.org
Sample
request letter:
Dear friends,
Unfortunately, I
am in need of a kidney transplant, and appeal to you for your generosity. My
team representative at NY Hospital has informed me that this procedure will be
performed laparoscopically and is minimally invasive. Hospital time for a donor
is 2-3 days with a full recover in 2-4 weeks and no loss of life expectancy. I
will cover all expenses and loss of income from your time away from work. I
require a donor with blood type A+ or O. Kindly respond to my email or phone
below, and thank you.
Harold
This is an excellent source of
information. You can subscribe without cost. www.iKidney.com
*************************************
Here is a recent US
newspaper article of two of my donor's friends who donated their kidney.
By Catherine Lutz
November 7, 2005
Larry Rosenfield and Brian Wilson have lived in Aspen
for a collective 70 years. But they didn't know each other until a
life-threatening disease brought them together.
Now
they're linked by a strong bond and want to tell their story in the hope that
it helps people who may be facing the same medical issue.
Rosenfield and Wilson both had kidney disease. Had they been
diagnosed a few decades ago, they would have had a 50 percent chance of
surviving. Both went on dialysis, a procedure that involves being hooked up to
a machine five hours a day, three days a week. And both felt like they were on
their own about their options until a chain of events brought first Rosenfield
then Wilson - through Rosenfield - into contact with a small Christian sect
whose members are donating healthy kidneys to save lives.
"The hook was the Aspen community," said Wilson, who was
introduced to Rosenfield through a mutual friend. "If I was in L.A. I wouldn't
have met someone like Larry. Three people in Aspen were willing to give me a
kidney. People here really pull for each other."
Wilson, 60, had kidney failure just a year ago. He was told
that his options for a new kidney were "a cadaver, a family member, or getting
on a list" that would take an estimated three to five years to find a match.
There were no matches in Wilson's family, and he didn't want to wait,
helplessly, for years.
"I was in the dark," he said.
"Then Larry comes into my life, and he gives me hope. He was my cheerleader;
and he educated me."
Rosenfield connected Wilson
with the Jesus Christians, a group of Christians whose goal is to emulate the
way Jesus lived. Rosenfield had received a kidney from a member living in
England, and was acting as a liaison between other members who wanted to donate
and potential recipients.
A match was found, and on
Aug. 23, Wilson received his new (also British) kidney at the University of
Colorado-Boulder hospital (the same hospital Aspenite and Olympian Chris Klug
received his liver transplant). Largely because of the efforts of a total
stranger and someone he had just gotten to know a few months before, Wilson was
healthy again.
"It was difficult for me because it
was a stranger, and it was a stranger doing the most selfless thing for me," he
said.
Wilson is the sixth person Rosenfield helped
get a new kidney - in November, a teenager in Grand Junction will be the
seventh.
Rosenfield, now a crusader for kidney
transplants, received his diagnosis in March 2000 at age 58. Congenital kidney
defects are common in his family - both his father and grandmother died from
complications from the hereditary condition before their senior years.
People with kidney disease have poorly functioning kidneys
and thus, a high level of creatinine - "the amount of junk floating around in
your blood," Rosenfield said. Normal levels range from 0.05 to 1.3 . -
Rosenfield's creatinine level was 19. Dialysis brings levels down to about 10,
but kidney transplants are often the most effective way to fight the disease.
Because of his blood type, Rosenfield was told he
would have to wait five years or more for a new kidney. Like Wilson, he chose
to take his destiny into his own hands. His sister found out about the Jesus
Christians through an Internet search, and one of the sect's members promptly
offered Rosenfield her kidney. It took some time to arrange the operation,
because most hospitals refuse to perform "good Samaritan" transplants -
transplants from a total stranger - for fear that organs are being bought and
sold.
Rosenfield finally found a hospital to perform
the operation and met his donor as she stepped off a plane in Madison, Wis.,
just days before the procedure in July 2002. No money was exchanged, though he
helped pay for some of her travel expenses.
The
successful operation changed Rosenfield in more than one way. Because of the
dearth of available information, he decided to act as a liaison and information
source for others suffering from kidney disease.
"Don't you think what happened to me is a miracle?" he said.
"Someone cared enough to do it for me. I have the time and the wherewithal, so
why not?"
In Colorado, 1,500 people are on the
waiting list for organs, and each year more than 6,000 Americans die from lack
of available organs. The worldwide network of kidney recipients is a close one,
and "the way it works is on a personal, word-of-mouth level," Wilson said.
Rosenfield and Wilson hope their story - their
experiences and the knowledge they've gained - will pay off for others
diagnosed with kidney disease. Getting in the loop, they say, may make all the
difference in the world.
Catherine Lutz's e-mail
address is cathlutz@aspentimes.com
I also listed my
request on all the organizations to which I belong. I suggest that you do the
same.
From AACI (Assn of Americans & Canadians
in Israel) announcement:
Judith Nusbaum is suffering
from renal failure and undergoes emotionally and physically painful dialysis.
She has completed all the tests required by Israeli Medical Association, and is
on the National Kidney Transplantation List in Israel, but the wait could take
years. She is looking for a kidney donor with types A or O blood.
The testing and transplant could either be done in Israel or
in America, since she has insurance in both countries. All your expenses would
be covered totally, including flights to and from Israel, tests, operation,
hotel, etc.
Judith may be reached via email at
etzion76@netvision.net.il
Another execellent site.
received the following request. It is possible to give
"cross-donations." If you have a donor who is not compatible with you, he/she
will be compatible with someone else. Usually this in done in groups of 6, 3
donors and 3 recepients. You'd have to check with your local hospital to find
out if they do this "cross-matching." It's worth a try. But remember you have
to have someone willing to donate their kidney.
Hello,
My name is Steve
Scarduzio, and I am a 32 year old jewish male, suffering from kidney failure
and have been on dialysis for two years. I see that Judith needs a kidney of
blood type A. My father is blood type A, and I am blood type B. Does she have
any donor that may be a B blood type, where that person could donate to me and
my father to her. My father has been through all the testing and is approved as
a willing and healthy donor. There are many hospitals here in the U.S. that do
this donor "swap," including Columbia Presbyterian, in NY, where I am on a
list. If you have anyone that may be a potential donor and would like to
discuss this, please contact me. Thank you so much and good luck to you.
Sincerely,
Steve Scarduzio
(Steve is listed at www.Neshama.org)
Another excellent site:
Topics in this digest:
1. December 2005 AAKP Kidney Transplant Today From: "kidneytransplanttoday"
kidneytransplanttoday@yahoo.com
Kidney Transplant Today is brought to
you by the American
Association of Kidney Patients (AAKP).
Toll free:
(800) 749-2257
Web site: http://www.aakp.org
E-mail:
info@aakp.org
http://www.ikidney.com/iKidney/Lifestyles/LifestyleTips/Transplant/It
Information on kidney transplantation: more information about this
article, please visit
http://www.paktribune.com/news/index.php?id=126718.
An excellent article: For more information about this article, please
visit
http://www.forbes.com/lifestyle/health/feeds/hscout/2005/11/18/hscout
529036.html.
Yahoo! Groups Links
http://groups.yahoo.com/group/kidneytransplanttoday/
Following are additional web sites to check out.
www.incompatiblekidneys.com
www.unos.org
www.LinksForLifeCampaign.com
www.transweb.org
www.kidney.org
www.transplanthealth.com
If you are willing to go
abroad for a transplant you can contact any of the following people: Foreign
transplatation:
Turkey,
Dr. Shapiro, tele: 050-5299073
Cost
approx. $100,000
Manilla,
Dr. Amit Gavish, 03-7528551
China
check the web
Colombia
check the web
Latvia
Check the web. It will be a cadavor kidney. |
| |
| |
|
|
